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Can you live a long life with advanced prostate cancer?

Not all men with advanced prostate cancer will die from prostate cancer, and men often live with advanced prostate cancer for several years.

prostatecanceruk.org - Living with advanced prostate cancer

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Daily life with advanced prostate cancer

Advanced prostate cancer can affect whether you’re able to work or carry out everyday tasks. But there is advice and support available.

Work and money

Advanced prostate cancer and the side effects of treatments can make it more difficult for you to work. You might decide to work part-time, or stop working altogether. If your partner is caring for you, they might not be able to work as much. A lot of men and their partners worry about how they will cope financially. It’s a good idea to get advice about your own situation. You may be entitled to sick pay if you are employed, or to retire early and start receiving your pension. You may also be entitled to claim certain benefits. In the UK, there’s a law to say that cancer is a disability. So, even if you feel well or don’t have symptoms that are bothering you, remember that the law protects your rights, including at work. You can find out more about benefits and other types of financial help from other organisations, including:

At home

You might find everyday tasks more difficult. If you need help, speak to your GP or your local council. The council’s social services department may provide a range of support services, such as practical and financial advice and access to emotional support. Social services can assess your needs and those of your carer, if you have one. They can work out what services can help, and provide information about support available in your area. Some services may be free. Or you may need to pay towards them.

Equipment and changes to your home

An occupational therapist may be able to advise you about practical things to make it easier to live at home. For example, they may suggest making some changes to your home, or special equipment to help with everyday tasks. Your social services department or your GP can refer you to an occupational therapist.

Help at home

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You may be able to get help from a home care worker. Home care workers include care assistants, for help with housework and shopping, and personal care assistants, for help with tasks like getting washed and dressed.

Respite care

If you need ongoing care from your partner, family member or a friend, respite care allows them to have a break. A professional will take over your care for a short time. Examples of respite care include: a sitting service, where someone stays with you in your home for a few hours

a short stay in a residential home or hospice

a carer who comes into your home for a few days.

If you live alone

Dealing with advanced prostate cancer can be hard at times, particularly if you live on your own. Don’t be afraid to ask for help if you need it. You could speak to your GP or nurse. If you have friends or neighbours nearby, they may be able to help, both practically and emotionally. Joining a local support group can also be a good way of meeting people with similar experiences. Find details of your nearest support group or ask your doctor or nurse.

Driving and public transport

There are various schemes available to help with transport. These include the Blue Badge scheme for parking, the Motability Scheme for help with leasing a car, and cheap or free travel on public transport. Contact your local council for details. If you’re having trouble getting around, ask your nurse or GP about local transport services. For example, the British Red Cross offer a door-to-door transport service. If you drive, you don’t need to tell the Driver and Vehicle Licensing Agency (DVLA) – or the Driver and Vehicle Agency (DVA) in Northern Ireland – that you have prostate cancer. But you should tell them if:

your medication causes side effects likely to affect safe driving

your doctor is concerned about your fitness to drive

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you develop any problems with the brain or nervous system

you can only drive vehicles with special adaptations or certain types of vehicle. If you’re unsure, speak to your doctor. You can find out more from the official government website, www.gov.uk. You should also tell your insurance company about your prostate cancer to make sure you’re properly covered.

Travel

Holidays can be a great way to relax. Having advanced prostate cancer shouldn’t stop you going away, but there are things you might want to consider. For example, it can be more difficult to get travel insurance. Read more about things to think about when travelling with prostate cancer.

Planning for the future

You might find that making plans helps you feel more prepared for what the future may hold. It can also reassure you about the future for your family. Some men find it difficult or upsetting to think about what will happen if their cancer progresses and they come to the end of their life. Although it might be very hard, it’s a good idea to talk about your wishes with those close to you so that they understand what is important to you. It can be helpful to have these conversations and start making plans well ahead of time. It’s important to write your wishes down so that if you become too unwell to make decisions, your healthcare team and family should know what you want. Find out more about planning for the future from Dying Matters and Compassion in Dying. Macmillan Cancer Support and Marie Curie also provide information about what will happen in the last few weeks and days of life.

prostatecanceruk.org - Living with advanced prostate cancer

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